March is Endometriosis Awareness Month
Your fertility journey is unique and something only you can understand. And no matter what stage you’re at in your journey connecting with others, especially those who’ve experienced similar pains and frustration is essential.
If you’re reading this, you’re most likely ready to gain support and guidance on endometriosis- a chronic and often painful condition. Unfortunately, it’s also one that affects millions of individuals, especially those hoping to conceive. And if you’ve ever experienced the pain associated with it, you know how difficult it can be. Fatigue, bloating, increased menstrual symptoms- all associated with this condition. But even with it affecting so many, endometriosis is frequently misunderstood. Those diagnosed find themselves faced with a journey of frustration, and uncertainty.
March is Endometriosis Awareness Month. Taking the time to reflect on your journey or gain a stronger awareness of endometriosis is a step forward. It’s also important to find comfort and support as you push on.
What is Endometriosis?
Endometriosis is when tissue similar to the lining of the uterus (or endometrium) grows outside the uterus. This tissue can be found on the ovaries, fallopian tubes, the outer surface of your uterus, or sometimes other organs. During a typical menstrual cycle the tissue of your uterine wall breaks down and bleeds. Hence the “flow.” However, when you have endometriosis, the “misplaced” tissue breaks down as well but can’t exit the body. As a result you experience inflammation, pain, scar tissue (adhesions), or in some cases the formation of cysts known as endometriomas.
The exact cause of endometriosis is still unknown and the condition is very complex. What’s important to keep in mind is that having endometriosis is not your fault and you can’t control whether or not you have it. You’re never to blame.
Endometriosis and You
Just like your fertility journey, symptoms of endometriosis vary from person to person. Someone may have mild symptoms while others find themselves in a lot of discomfort or pain. If you think you may have endometriosis or are looking for more validation you can look for these common symptoms:
Chronic Pelvic Pain
Painful Periods (a.k.a. Dysmenorrhea)
Pain during or after intercourse often impacting relationships and emotional well-being.
Pain with bowel movements or urination particularly during your cycle
Excessive or Irregular Bleeding
Infertility
Gastrointestinal Issues: Bloating, nausea, diarrhea, or constipation, oftentimes mistaken for irritable bowel syndrome (IBS).
Fatigue leaving you feeling exhausted and not able to complete your daily tasks
Aside from the physical symptoms, many diagnosed also struggle emotionally as it takes such a toll on your mindset. You may find yourself experiencing anxiety or depression. Just another reason why now more than ever those affected are encouraged to seek guidance, support and speak proactively on their own behalf.
Seeking Guidance and Taking a Step Forward
One of the most difficult aspects of endometriosis is a diagnosis. It could take years of advocating, searching for second opinions before you finally find an expert that properly recognizes the difference between a “heavy” period and/or endometriosis. Why? Sadly, it’s due to lack of awareness, varied symptoms and similarities to other conditions that make it tough.
True, there’s no cure for endometriosis but various treatment options have been promoted to help manage symptoms:
Pain Management: Always discuss with your doctor ways to manage your pain. Some ways are: heating pad, pelvic floor exercises, TENS machine and acupuncture.
Lifestyle Adjustments: Healthy eating habits, exercise, and prioritizing self-care can help make even your toughest moments, a bit easier to handle
Surgeries and Procedures: Be sure to see an endometriosis specialist as everyone is unique and each “plan” should be specified for you.
Fertility Treatments: If conception is difficult, other options (discussed with your doctor of course) could become part of your journey
Moving Forward with Endometriosis
Living with endometriosis is challenging, but with the right guidance, tools and resources anything is possible. Always remember that knowledge is power. The more you know, the better. This is one reason March is endometriosis awareness month. With the amount of misdiagnosis and mistreatment that have occurred, the more aware you are and the more in tune with your body you are, the better. Understanding your body, your condition, treatment options, and triggers can help you make informed decisions and move forward towards healing. One step at a time.
It’s also important to keep in mind that although your doctor may be wonderful, not all specialize in endometriosis. Finding an experienced gynecologist or endometriosis specialist is crucial. Don’t be afraid to advocate for yourself and seek second opinions if necessary.
Focus on Your Lifestyle and Self-Care
Self-care is such an important part of everyday life. With all that goes on during the day, self-care is sometimes the hardest to do but actually one of the best things you can do for yourself.
Exercise: Gentle activities like yoga, walking, or swimming can help reduce stress and improve circulation- alleviating some pain and discomfort
Sleep and Stress Management: Lack of sleep, and stress definitely take a negative toll on your body. Remember, your body needs rest to function properly. Prioritizing sleep and using relaxation techniques like meditation can help manage symptoms.
Another aspect of self-care is creating and finding a strong support system. You can do this by joining support groups, finding guidance with experts coaches and therapists as well as finding comfort in family members. Endometriosis can feel isolating, but you’re not alone. Joining support groups, online communities, or therapy sessions can provide emotional relief and practical advice.
Never Give Up On Yourself
Endometriosis is a complex and often misunderstood condition that affects millions of people worldwide. While the journey with endometriosis is not easy, it is possible to manage symptoms, seek appropriate treatment, and move forward. By educating yourself, finding the right support or care, prioritizing your health, and connecting with others who understand your struggle, you can take control of your health.
There’s still much to learn about endometriosis. Raising awareness, sharing personal stories, and advocating for better research funding can help improve the future of care for all those affected. But just remember: your pain is real, your experience is valid, and you deserve compassion and effective care.